Privacy Policy

Dementia Concern – May 2018

This privacy policy applies to Dementia Concern.  It explains how the organisation uses any personal data we collect.  

A new law changes how we handle your personal data:

From 25th May 2018, a new EU law comes in that introduces new requirements for how organisations process personal information/data.    Dementia Concern complies with the General Data Protection Regulations (GDPR) in order to protect your privacy and data. Under this new law we can only collect and process your personal data for specified, explicit and legitimate purposes.

What is your personal data?

Your personal data is information that identifies you.  This will include your name, date of birth or your address or when you were diagnosed.

If you have a diagnosis of dementia or are a loved one/carer of someone with dementia we usually ask for personal information about your needs and what support you might need now and in the future.

If you are contacting us to help us with volunteering, fundraising or to get some basic information we will need less personal information but will still ask if and how we can contact you.

Why do we need this data and how will we use it?

The staff and volunteers at Dementia Concern will need some information about you and your needs in order to help support you or your loved one.   Your personal information will:

  1. Help us send you an information pack or set up an initial assessment meeting to discuss your needs and that of your carer
  2. help us decide what support or services to offer you internally within Dementia Concern
  3. help us to provide good quality services to you
  4. ensure that the services you receive from us are safe and effective and
  5. enable us to refer you to other agencies/organisation that are better suited to your needs.

Who has access to your personal data?

Other staff in Dementia Concern may also need to use some of your personal data to:

  • Check the quality of the service
  • Help maintain services and plan new services
  • Investigate and deal with complaints or concerns about our services

Is your data confidential?

Personal data is kept confidential and is not disclosed inside or outside Dementia Concern without your agreement (consent) or a good reason.  An example of this might be when a member of staff has to assist with the emergency services if someone is ill or in danger.

Is your data kept securely?

Dementia Concern keeps your personal data secure on a Centralised Cloud-base Database, which can only be accessed by authorised Dementia Concern staff.

Some of our services are also still using paper-based records of personal data or within our internal computer system or a combination of both.  All personal data is held securely within these systems.

We will be moving all our data records over onto a Centralised Database, as soon as we can.

We will keep your personal data for 7 years after you stop using our services so that the information can be used for any follow-up activity that may be needed.

Can you access your personal data?

If you ever want to see the personal data we have on you, we will provide you with a copy of it.

We will correct any information that you tell us is incorrect and you can ask us to remove your data at any time, if you no longer want Dementia Concern to hold it or to contact you.

If you wish to contact us about your personal data please write to us at:

Roger Beckett
Dementia Concern
223 Windmill Road
W5 4DJ

Or Email us on:

Cookie Policy

Use of ‘Cookies’

Like many other websites, our website uses cookies. ‘Cookies’ are small pieces of information sent by an organisation to your computer and stored on your hard drive to allow that website to recognise you when you visit. They collect statistical data about your browsing actions and patterns and do not identify you as an individual. For example, we use cookies to store your country preference. This helps us to improve our website and deliver a better more personalised service.

It is possible to switch off cookies by setting your browser preferences. For more information on how to switch off cookies on your computer, visit our full cookies policy. Turning cookies off may result in a loss of functionality when using our website.

Main Cookies used on our site

Google Analytics

These cookies are used to collect information about how visitors use our site. We use the information to compile reports and to help us improve the site.

The cookies collect information in an anonymous form, including the number of visitors to the site, where visitors have come to the site from and the pages they visited.

For more information on Google Analytic’s privacy policy visit

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